Tina Szymczak

So I haven’t blogged for several months. Honestly the summer flew by, we only got to go camping in our new pop up trailer twice and both times were unbearably hot and humid – like sit in your own sweat all day type humid. Our niece Teegan came down for several weeks and she was Corbin’s support person in the evenings. He loved having someone his age to watch movies with and she even managed to get him to go for walks. We loved it because we weren’t inundated with a million requests. He also got his beginner driving licence.

Corbin also found his way onto this blog. I knew it would happen one day. I have tried to be careful what I share but when I asked him if it was ok for me to continue to share about him he answered “someone has to tell what it is like”.  I teared up over that one.

Corbin turned 18 at the beginning of October so we have been knee-deep in paper work for Ontario Disability Support Program and doing the Supports Intensity Scale (SIS) through the Developmental Services Ontario (DSO). That gobbledygook means we had to prove to two different arms of the same government that he qualifies as having a developmental disability (also known now as Intellectual Disability). Oh and we also have to prove to the federal government that he still is disabled to continue to receive the Disability Tax credit.  We have heard back from ODSP that he qualifies but we are waiting to hear from the DSO. This leaves us in a bit of a pickle as Corbin has paid supports during the week and when you turn 18 the funding stops and you have to get support through DSO. We are running the risk of losing Corbin’s workers – one who has been with us for almost 5 years. I try not to think of it, as there is not much we can do but wait.

Also in the works is that I am speaking at a conference about Our Journey: Finding Hope and Courage through Family Centered Care.  It’s partially about my family’s path with Corbin and also looking at some research and best practices for Family Centered care. The conference starts tomorrow and I speak on Friday – hence why I am writing here, I am putting off going over my presentation.  Please come back and check in – I plan to do more writing again once the conference is over.

October 18, 2016

Checking In

So I haven’t blogged for several months. Honestly the summer flew by, we only got to go camping in our new pop up trailer twice and both times were unbearably hot and humid – like sit in your own sweat all day type humid. Our niece Teegan came down for several weeks and she was Corbin’s support person in the evenings. He loved having someone his age to watch movies with and she even managed to get him to go for walks. We loved it because we weren’t inundated with a million requests. He also got his beginner driving licence. Corbin also found his way onto this blog. I knew it would happen one day. I have tried to be […]
July 12, 2016

Harder Than I Ever Thought It Would Be

We worked long and hard to become parents. Years of infertility filled with tests, needles, examinations, surgeries and the loss of dignity. We moved on to adoption and were again met with questions and the need to prove ourselves. But finally the day came and we welcomed a wonderful 3 year old boy to our family. We were so proud and excited to start our new life together. I was new to my job so Adam took a few weeks of parental leave while I finished up my probationary period. From all accounts, they had a great time each day just hanging out and playing and setting up a pool for Corbin.  I was so excited to be a stay at home mom,which […]
July 1, 2016

Out There

I have been submitting writing to other sights and then losing track when they are posted. So here are the last two (that I am aware of, lol) on Rage Against the Minivan and The Mighty So enjoy and please leave a comment if you are so inclined. Happy Canada Day Everyone
June 16, 2016

Daring to Dream

Corbin is struggling in some of his classes this semester – he doesn’t get along with one of his teachers and it has always been an issue. If Corbin doesn’t get along with them he tends to fall apart in their class. It’s just the way it is.  He is in danger of failing two classes and he has been doing so well up until now that I find it hard to accept that he might just fail those classes. I mean – we are so close to graduating next year! I see what I did there “WE are so close to graduating”. It’s true – this isn’t just about him anymore. I am wrapped up in his grades and […]
June 3, 2016

A Full Year and Counting

The first part of this story can be read here After reading the first part over again I have to say this: the truth is I am not now who I used to be prior to my hospitalization. My experiences and the medication have made me a new person. Whether I like it or not. I spent the better part of a year trying to get back to where I was. People would comment how quiet I was and were wondering if I was ok. And I was. I was doing ok but I also felt lost. I had a horrible memory and almost zero motivation to do anything. My favourite thing was to have a nap – I would […]
May 26, 2016

Advice to Myself as a Young Mom of a Child with Disabilities

This a marathon, not a race. Slow down and know that all those phone calls and letters can wait until tomorrow. He won’t know that you refrained, just barely, from calling his school Principal an idiot or that you successfully had his suspension rescinded. Get more sleep. It’s tempting to stay up after he is asleep to have some “me time” but in order to work with others you need to be rational and well rested. Put down the mop and just spend time with him. Teach him how to bake and let him eat the batter. Play board games over and over. Go to the park. He will remember the wind on his face as you pushed him higher […]